BPA - Global Porphyria Awareness Day raffle

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🎉 Join the Fun & Make a Difference this Global Porphyria Day! 🎉

Get ready for our Porphyria Awareness Day Raffle – your chance to win some amazing prizes while supporting families living with porphyria across the UK and Ireland.

🗓️ Global Porphyria Day is on 18 May, and this year, we’re marking the occasion with our biggest raffle yet – all in the name of raising awareness and providing vital support.

Every ticket helps shine a light on porphyria and brings hope to those affected. Don’t miss out – play, win, and support a great cause!

Scroll down to see our full list of prizes, including a cash prize of £250, a Nintendo Switch, an iPad, over £200 in vouchers for sun-protective clothing, signed Tottenham Hotspur and Manchester United merch, and Ninja Air Fryer amongst many more prizes – and don't forget to register for the grand prize draw event on 18 May to see if your number gets called!


Thank you to our sponsors and supporters for their amazing support for the porphyria community. Portal Therapeutics, Disc Medicine, Alnylam Pharmaceuticals, Clinuvel and Mitsubishi Tanabe Pharma 


What is Global Porphyria Day?

Global Porphyria Day (GPD) is a day where the international porphyria community comes together to raise awareness of porphyria and rare disease in our local communities.

It takes place each year on 18 May and is coordinated by the Global Porphyria Advocacy Coalition (GPAC), an umbrella organization for national porphyria patient advocacy organisations across the world.


Find out more about how to get involved in the GPD festivities at www.porphyria.org.uk/gpd-2025.

To find out how our work supports families living affected by porphyria, watch this video where EPP patient Tiernan and his mother Niamh explain how the BPA helps them to build community and reduce feelings of isolation: https://www.youtube.com/watch?v=QU_0b5fm48s.

         

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Promoter: The British Porphyria Association, 136 Devonshire Road, Durham, DH1 2BL. Registered Charity no. 1089609

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Supporting

British Porphyria Association

The British Porphyria Association is committed to advocating for, supporting and educating porphyria patients, relatives and medical professionals, so as to improve the quality of life for those living with the different types of porphyria. We promote disease awareness and the advancement of research into new therapies.

Awareness is vital if we are to ensure quicker diagnosis and a better patient journey.

The porphyrias are a group of rare, mainly genetic, conditions that have life-limiting and sometimes life-threatening impacts on a patient’s life. Patients often experience exceptionally negative effects on their physical health, family and social relationships, financial stability and psychological and emotional wellbeing. By providing families with the tools and resources to be informed about their condition, we can help to improve the lives of those affected.

£1,638.00 raised by 134 supporters

When

From the 18th April 2025 at 8:00 AM, until the 18th May 2025 at 6:00 PM.

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The raffle will be drawn on the 18th May 2025 at 6:00 PM

£1.00 per raffle ticket

Prizes

Nintendo switch, iPad, £250 cash prize and lots more

Win a fantastic prize:

  • Nintendo Switch & game bundle
  • Ipad 11" A16 128GB 
  • £250 cash prize
  • $250 Coolibar - sun protective clothing voucher
  • Tottenham Hotspur FC - signed pennant
  • Manchester United - signed photo
  • Ninja Dual Air Fryer Foodi 
  • Beats solo 3 wireless headphones
  • 2 tickets to ITV's Loose Women
  • £100 Sunsibility - sun protective clothing voucher
  • Spa afternoon for 2 at YU Spa (Dundee)
  • £50 Prezzo voucher
  • Hewlett Packard deskjet 2820e printer
  • £20 Five Guys voucher
  • Movie night basket - incl KFC voucher
  • Women's beauty box
  • Men's toiletries box
  • Kid's basket
  • Home bundle


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