In 2021 two lifelong friends, Andy White and Mike Whitehouse walked the Wainwright Coast to Coast to celebrate their 60th birthdays and raise more than £14,000 towards research into finding a cure for a rare genetic condition, NF2-related schwannomatosis - NF2 for short.
And now in 2023 a new team is aiming to beat that amount as well as widen our scope to include Schwannomatosis more generally.
So, we go again. And this time there are 3 of us. The new team is Mike Keel, Noel Hastings and Andy White – a trio of 60+ year-olds determined not to allow aging limbs to slow down our efforts.
After all, this is personal. In 2019, Andy’s daughter Rebecca, now 35, was diagnosed with NF2. In the same year, Noel’s daughter Hayley, now 34, was diagnosed with Schwannomatosis. Mike, a school friend of Andy’s stretching back to the early 1970s, in the goodness of his heart, and as a far more experienced walker than the other two, has taken us under his wing to ensure we complete the rigours of this latest challenge – The Pennine Way...!! Stretching 268 miles from Edale in the Derbyshire Peak District to Kirk Yetholm just inside the Scottish Border, the path runs along the Pennine hills – the “backbone of England” – and is generally regarded as one of Britain’s toughest. We three gluttons for punishment aim to complete the walk in 19 days – not bad for 3 people with a combined age of 185.
NF2 and Schwannomatosis are caused by faulty genes and are associated with schwannomas (non-cancerous tumours) of the nervous system - brain and spine. For people with NF2, vestibular schwannomas cause hearing and sight loss, as well as tumours in the brain and on the spine. In Schwannomatosis the most common symptom is chronic pain, which is often severe and difficult to manage. People with both conditions have an increased risk of tumours of the nervous system that can lead to significant medical problems, especially if there are multiple tumours in or next to the brain – which ca
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