We are celebrating 5 years of the our NF2 charity this year.
For NF2 Awareness Day this year, Oscar & his friends are is walking 5k at Beeston Fields recreation ground to raise awareness and funds towards the Tcell project NF2 research.
NF2 continues to give a rough ride this year and Oscar has Avastin immunotherapy treatment every 4 weeks and has a growing spinal schwannoma despite the avastin treatment. There is a desperate need to find new treatments for NF2 that are better and kinder for the body
There is a massive unmet need of treatment options and we need to take action to change the lives of those with NF2 before the tumours grow and take the nerves one at a time. It really is like playing Russian roulette.
Pete and Dylan are hoping to join us on the 5K walk. We know its a very big ask, but really every penny helps the research get closer to better treatments.
Cladceil Ltd will fund match the first £250 of donations. Anything donated up to that will be doubled!
5K is a big challenge, Oscar gets very tired after his Avastin treatment so its a massive thing for him, he is grateful for ANY support you can give and ro his friends walking with him.
As we are a fully volunteer based charity with no staff costs or premises costs, every penny of any support we receive from you would go towards NF2 research. NF2 BioSolutions UK & Europe continue to raise awareness of NF2, connect patients for support and offer hope to patients and their families and ultimately to fundraise to develop treatments or a cure for NF2. Please support if you are able.
We keep on going and will not let NF2 define us.
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