21 years after saying “you've got to run a marathon to run a marathon†I'm delighted to say TOFS (Tracheal-Oesophageal Fistula Support) has given me the opportunity to do just that.
To be fair, life did take a rather unexpected turn when I was diagnosed with Hodgkin's Lymphoma at 12 weeks pregnant with our first child. But chemotherapy was nothing compared to the battle Benjamin has fought. He chose life from the moment of conception, withstanding 5 rounds of chemo and me critically ill with pneumonia before even making his grand entrance to the world 9 weeks early...and that was just the prologue to his own incredible story. Being born with TOF and OA (Oesophageal Atresia) has meant breathing and eating have been a constant challenge. However, an extensive medical and surgical career, along with lots of tears, sweat and micromanagement from us, combined with sheer strength and determination from Benjamin, he is living a remarkably fulfilling life
It would be fair to say we are in awe of the way Benjamin faces every day. He really is one of the most resilient individuals and we are truly blessed to have the privilege of calling him our son.
You are our real life superstar and dearly loved by so many people, so Benjamin......this is for you xx
