The BPA are excited to announce that Clinuvel Pharmaceutics LTD have donated a further ‘huge’ batch of CYACÊLLE suncream for the BPA to share with those affected by any of the skin porphyrias, across the UK and Ireland. CYACÊLLE is a large particle (polychromatic photoprotection) sunscreen product that is described as “A broad spectrum SPF 50+ with photoprotection against UVB, UVA and HEV light, CYACÊLLE is water-resistant, dermatologist approved and formulated with 100% mineral UV filters.” for more info see clinuvel.com/photocosmetics/cyacelle/#section-next
We are currently awaiting a shipment into the UK. But, if you’d like one sending out (once they arrive), please order here.
We are asking for a donation of £5.00 to cover the BPA’s administration costs, including P&P, for sending the creams out to our members. If you would like more than one cream sending, please select the appropriate box(es) on the form. If you are facing hardship and need the creams to be sent out at no cost to you, please email us helpline@porphyria.org.uk
We’d love to be able to report back on the experience of this product for porphyria patients who experience phototoxic/photosensitive reactions. With this in mind, we hope that you will be happy to complete a survey - using the link/QR code that you will find on your letter within the box.
Optionally, you can save your purchase to your account by Signing in.
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