Story

2013: Apart from a few allergies and intolerances I was a healthy, energetic, fit person - always on the go. Nothing stopped me. I'd think nothing of going for a 110-length swim, followed by a 6-mile walk and a 20-mile bike ride. Our family holiday was cycling 222km along the C2C, Whitehaven to Tynemouth cycle route.

July 2014: My life changed dramatically overnight. Basically, my body rebelled against me. Amongst other things, I got Chronic Fatigue Syndrome (CFS) and, later a hypermobile Elhers Danlos Syndrome (hEDS) diagnosis. The ceaseless energy is gone. Now I think about the amount of energy spoons I can spend each day but they often run out. To achieve things, I pace myself and break down tasks into small, manageable chunks.

Feb 2015: Regaining control of my life was key. My trusty walking stick and I started daily walks. I couldn't go far, or fast, but I went out every day!

April 2016: I got my exercise bike. I only managed 2mins a day, but 5 years on after building strength, stamina and determination I can now manage 1hr a day. I still can’t go fast; managing 4.5-5.5km a day. It's not far and not the same as cycling in the fresh air, but that's OK.

Jan 2021: 2020 was the trickiest year we could imagine. No one's going far from home and everyone's got different ways to cope. I'm a positive person and it's important to me to find the best in things - discover ways forwards. My 2021 challenge will be cycling from Land’s End to John o'Groats. Obviously, not in the real world. There's no way I could manage a real bike - balancing's hard and hills, impossible. But, taking 1 tiny bit at a time, on my exercise bike, I'll achieve my goal! I believe it'll take approx 1 year to pedal the virtual route. I'm starting on 24.01.21 (and health depending) hope to finish by 24.01.22. I’m using a tracking app and will post regular progress updates. Please support my challenge and check in regularly.

Read more at www.buds.org.uk

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Updates

Well, it is now April 2022 and due to ill-health over the last year I am still pedalling away on this virtual exercise bike challenge.  It may be taking me longer than I had ever envisaged but I will get there eventually.  I have at least made it into Scotland.  If you want to find out all the details of how I have got on over the last 16 months, please take a look at https://buds.org.uk/back-in-the-saddle-lands-end-to-john-ogroats/ where you will also be able to see my blog updates.

Updated on Wed, April 13 2022, 8:38 PM

Supporting

BuDS Disability Service

BuDS Disability Service, established in 2004, is a user-led, pan-disability grassroots charity working across England. We are led by disabled people and committed to the social model of disability. We were known as Buckinghamshire Disability Service (BuDS) until 2025, when we became a national charity.

Our projects help disabled people participate in society, improve their skills, find work, access shops and public places, find accessible transport, enjoy events, deal with hate crime, and much more. We help tens of thousands of people across England. 

200%

£701.25 raised of £350.00 target by 7 supporters

£620.00 donated plus £81.25 in GiftAid . £295.00 raised offline

When

From the 24th January 2021 until the 17th July 2022

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