In 2012, our daughter was born without much of her oesophagus. The condition, "TOF/OA" was identified the day she was born and so started the journey that began with ambulances, surgery and intensive care, that now outwardly appears like nothing ever happened.
Part of the reason for her incredible outcome with this condition was the invaluable support of the TOFs charity. Connecting us with experts and specialists as well as parents also experienced in this rare condition meant we were able to learn so much and get the best possible help, guidance and techniques to guide her through the early years.
Amazing moments such as the first time she was able to swallow difficult foods, manage her own eating and now inhale platefuls of pretty much anything are a testament to the help we've received from TOFS.
I ran the marathon for them back in 2014 and now, almost 10 years on, want to do my bit again in the 100 mile (160km) bike race "RideLondon" for them.
This is a small charity for a rare condition. And, as such it doesn't get nearly the amount of funding that it could, compared to bigger charities. So many new parents of TOF/OA kids are right now going through anxiety, worry and blind spots that this charity can help them with. Do consider donating a little to help them and I promise to never let up when my legs start to burn!
Your support and donations make you all so awesome!
Much love,
RICHARD
