About

Great Britain residents only - get your tickets to support those affected by ichthyosis!

The Ichthyosis Support Group (ISG) was set up by people directly affected by ichthyosis and the group continues to exist through fundraising and voluntary work. The ISG is the only charity in the UK and Ireland supporting those affected by ichthyosis. 

Fundraising is crucial to enable the ISG to continue supporting individuals and families.

The way in which the ISG provides this support is extensive and is as follows:

  • Freephone helpline
  • Newsletters
  • Information written by medical professionals
  • Educational conferences
  • Family days
  • Children’s residential camps
  • Online discussion sessions

Ichthyosis is a lifelong genetic condition and very visible. It doesn't come and go, nor is patchy like other more well known skin diseases. The physical and psychological impact of the condition can't be underestimated, and unwelcome comments and questions, stares and ignorance can be the hardest part of living with ichthyosis. It's not well known even by some medical professionals and the ISG provides individuals and families with a vital support network.

£100 - Funds 10 information packs for a school to help children attend lessons and mange their condition in school

£250 - Funds information, support and advice to 10 newly diagnosed families 

£500 - Funds the cost of 2 families attending the family conference

£1000 - Funds the cost of 5 children to attend a children's camp 

£5000 - Funds a small research grant

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£110.00 raised by 8 supporters

When

From the 19th November 2021 at 12:00 AM, until the 1st January 2022 at 12:00 AM.

The raffle will be drawn on the 1st January 2022 at 12:00 AM

£1.00 per raffle ticket

10th Prize - John Lewis/Waitrose £10 Gift Card

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£10 gift card for John Lewis and Waitrose 

Kindly donated by Waitrose, Yateley

1st Prize - Eucerin Anti Age Products

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Bundle of Anti Age Products from Eucerin worth £90+ RRP

Hyaluron-Filler Day Cream, Serum, Booster and Mask 

Kindly donated by Eucerin

2nd Prize - £75 Amazon Gift Card

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£75 Amazon Gift card

Kindly donated by Emollin UK

3rd Prize - Women's Cashmere Set

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Women's Cashmere Wristwarmer and Neckwarmer worth £55

Made in the UK from 100% recycled cashmere

Kindly donated by Turtle Doves

4th Prize - 160 ft Bungee Jump

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160ft Bungee Jump worth £39

3 locations - Maidenhead, Rotherham & Middlesbrough

Kindly donated by Buy A Gift

5th Prize - SHO 800ml Food Flask

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SHO 800ml Food Flask RRP £33.99

Reduce single use plastic. Use to keep food hot (10 hrs) or cold (20 hrs), including soups, salads, pasta, and even ice cream! Big enough for 2.

Kindly donated by SHO

6th Prize - Women's Gift Set

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Women's Gift Set from Next worth £32

Glitterball Eau de Parfum, 6 piece manicure set & Initial ‘A’ necklace

Kindly donated by Next


7th Prize - Men's Gift Set

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Men's Gift Set from Next worth £28

Signature Eau de Toilette, Body Wash and Post Shave Balm, Origin Hair & Body Wash and Cotton Rich Socks

Kindly donated by Next

8th Prize - Pure Heavenly Chocolate Taster Bars

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8 assorted 30g bars. Free from Dairy (vegan), Gluten, Soy & Palm Oil. Less than 1% sugar in every bar.

1 x Salted Caramel, 1 x Mint, 1 x Silk, 1 x Coconut 30g, 1 x Hazelnut, 1 x Banana, 1 x Orange, 1 x Strawberry

Kindly donated by by Pure Heavenly

9th Prize - Yorkshire Teabag bundle

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Yorkshire Teabag bundle worth £15

Yorkshire Tea, Yorkshire Gold, Yorkshire Decaf, Yorkshire Toast & Jam, Yorkshire Biscuit and Yorkshire Bedtime

Kindly donated by Yorkshire Tea

Supporting

Ichthyosis Support Group from Ichthyosis Support Group

The Ichthyosis Support Group is committed to the ongoing provision of an information network and support structure for sufferers and families affected by ichthyosis. Associated with that we need to create a greater awareness and understanding within the medical profession, and lobby for greater research into this distressing condition.