Claire’s fundraising for Up! the adult Cerebral Palsy Movement

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Story

Cerebral Palsy affects 130,000 adults in the UK. It presents in childhood, and at that stage, is rightly given coordinated care. Then at 18, you are no longer under paediatric services, and the support structure disappears. Cerebral Palsy is a lifelong condition, yet the way healthcare is provided to adults with CP is as if the condition has miraculously disappeared.

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Updates

Dottie is nearly 8 now

Updated on Thu, May 23 2024, 8:23 PM

I started to realise how little support was readily available for adults with Cerebral Palsy when in my mid 30’s I became pregnant with my daughter. Up until this point I wrongly assumed the support was there but that I just hadn’t needed it yet. I’d been having regular botox treatment since I was 18 so knew I was in ‘the system’ as such so thought my Cerebral Palsy and the impact of it on my pregnancy would be taken into consideration. However, I found that during maternity appointments my Cerebral Palsy was never mentioned unless I raised it. In fact, I was referred to consultant care due to me having IVF treatment to become pregnant rather than Cerebral Palsy. 

Updated on Thu, May 23 2024, 8:22 PM

Supporting

UP - The Adult Cerebral Palsy Movement

UP - The Adult Cerebral Palsy Movement is a community-led charity designed to empower, inform and support adults who suffer from Cerebral Palsy. We are the only UK charity for adults with Cerebral Palsy.

Our aim is for all adults with Cerebral Palsy to live their best lives. Our movement is about positively making the changes in ourselves, and in society, so that we can live our best lives. It is rooted in our belief in our own power, standing up for ourselves and our rights, and combatting ignorance, prejudice and indifference.

Cerebral Palsy is a lifelong condition that affects 130,000 adults in the UK. It is a condition which develops associated co-morbidities during adulthood and demands specialist care pathways. However, co-ordinated and specialist services do not exist today for adults with Cerebral Palsy. This lack of support results in worse health outcomes and, lower education and employment participation for individuals.

UP - The Adult Cerebral Palsy Movement, charity number 1179458

186%

£930.00 raised of £500.00 target by 17 supporters

£760.00 donated plus £170.00 in GiftAid

When

From 24th May 2024. Until 31st July 2024.

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