NF2 BioSolutions UK

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About

We are a registered UK charity that supports research to bring an end to the pain and suffering of children and adults with Neurofibromatosis Type 2 (NF2). NF2 is very rare with under 2000 cases in the UK, it's a condition that causes tumours to grow in the brain and spine as well as elsewhere in the nervous system. As the tumours grow, they cause permenent and life changing damage. Those affected have the condition from birth, NF2 is degenerative and a ticking time bomb. We are a not for profit, patient led charity with all donations going directly to end NF2. Our board of trustees includes the lead specialist for NF2 in the UK Professor Gareth Evans. We can't do it without you Thank you

       

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£3,077.50 raised by 21 supporters

£2,592.00 donated and £485.50 in GiftAid

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NF2 BioSolutions UK

We are a registered UK charity that supports research to bring an end to the pain and suffering of children and adults with Neurofibromatosis Type 2 (NF2). NF2 is very rare with under 2000 cases in the UK, it's a condition that causes tumours to grow in the brain and spine as well as elsewhere in the nervous system. As the tumours grow, they cause permenent and life changing damage. Those affected have the condition from birth, NF2 is degenerative and a ticking time bomb. We are a not for profit, patient led charity with all donations going directly to end NF2. Our board of trustees includes the lead specialist for NF2 in the UK Professor Gareth Evans. We can't do it without you Thank you

Twitter

For further information visit the twitter feed.

  • Thu, October 6 2022, 4:01 PM : A few in-person spaces have become available if anyone wants to attend at the Mecure, Manchester Piccadilly in person on Sunday 9th, sign up below. £5 attendance & covers lunch and breaks. https://t.co/XcQeWODGl8
  • Thu, October 6 2022, 11:09 AM : NF COMMUNITY DAY NF2 Breakout session - we have a speaker joining us in the afternoon talking about Cochlear implants So ..... what do you want to know? Please submit your questions so that we can put them to the speaker. #endNF2 #neurofibromatosis type2 #NF2support #nf2 https://t.co/EcCJIe35Eu
  • Thu, October 6 2022, 11:07 AM : RT @NFBot2: Repeat single-fraction stereotactic radiosurgery for recurrent vestibular ... https://t.co/l4uem3CKlQ
  • Thu, October 6 2022, 11:03 AM : Today is Gift Aid Awareness Day and we are shouting about the importance of Gift Aid! with the #TickTheBox campaign! Every year, approx £560m goes unclaimed. We can claim back 25p per £1 donated, Please #TICKTHEBOX – t oboost our research funds Thanks you! #giftaid #endNF2 https://t.co/OuOAyTzzmk