We are a registered UK charity that supports research to bring an end to the pain and suffering of children and adults with Neurofibromatosis Type 2 (NF2). NF2 is very rare with under 2000 cases in the UK, it's a condition that causes tumours to grow in the brain and spine as well as elsewhere in the nervous system. As the tumours grow, they cause permenent and life changing damage. Those affected have the condition from birth, NF2 is degenerative and a ticking time bomb. We are a not for profit, patient led charity with all donations going directly to end NF2. Our board of trustees includes the lead specialist for NF2 in the UK Professor Gareth Evans. We can't do it without you Thank you
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We are a registered UK charity that supports research to bring an end to the pain and suffering of children and adults with Neurofibromatosis Type 2 (NF2). NF2 is very rare with under 2000 cases in the UK, it's a condition that causes tumours to grow in the brain and spine as well as elsewhere in the nervous system. As the tumours grow, they cause permenent and life changing damage. Those affected have the condition from birth, NF2 is degenerative and a ticking time bomb. We are a not for profit, patient led charity with all donations going directly to end NF2. Our board of trustees includes the lead specialist for NF2 in the UK Professor Gareth Evans. We can't do it without you Thank you
For further information visit the twitter feed
- Thu, February 2 2023, 10:56 AM : Midweek knowledge! Just a few of the symptoms of NF2 recently taken from a poll in our NF2 science group. #endNF2 #NF2awareness #neurofibromatosis type2 #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #NF2SWN #nf2charity #nf2cure #nf2treatment #nf2trials #nf2research https://t.co/KAzIzUc4VA
- Wed, February 1 2023, 11:39 AM : Tinnitus is something that affects many Nf2ers, and we will be posting more during #TinnitusWeek https://t.co/nhOE6HtLGC
- Wed, February 1 2023, 9:51 AM : Midweek knowledge! on Eye Issues today. Remember look after your eyes! #endNF2 #NF2awareness #neurofibromatosis type2 #NF2support #nf2 #nf2family #nf2warrior #NF2SWN #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2research #nf2awarenessday #nf2journey #raredisease https://t.co/3ASPUs7kWZ
- Tue, January 31 2023, 1:55 PM : Our friends at Rareminds are running a mindfulness session if anyone is interested in this, head over to the link in the post to sign up. #NF2 #NF2SWN #Neurofibromatosis type2 #NF2life https://t.co/A0NFitAJ89