We are a registered UK charity that supports research to bring an end to the pain and suffering of children and adults with Neurofibromatosis Type 2 (NF2). NF2 is very rare with under 2000 cases in the UK, it's a condition that causes tumours to grow in the brain and spine as well as elsewhere in the nervous system. As the tumours grow, they cause permenent and life changing damage. Those affected have the condition from birth, NF2 is degenerative and a ticking time bomb. We are a not for profit, patient led charity with all donations going directly to end NF2. Our board of trustees includes the lead specialist for NF2 in the UK Professor Gareth Evans. We can't do it without you Thank you
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£10,072.50 raised by 36 supporters
£9,277.00 donated and £795.50 in GiftAid Donations
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Supporting
We are a registered UK charity that supports research to bring an end to the pain and suffering of children and adults with Neurofibromatosis Type 2 (NF2). NF2 is very rare with under 2000 cases in the UK, it's a condition that causes tumours to grow in the brain and spine as well as elsewhere in the nervous system. As the tumours grow, they cause permenent and life changing damage. Those affected have the condition from birth, NF2 is degenerative and a ticking time bomb. We are a not for profit, patient led charity with all donations going directly to end NF2. Our board of trustees includes the lead specialist for NF2 in the UK Professor Gareth Evans. We can't do it without you Thank you
For further information visit the twitter feed
- Sat, June 3 2023, 10:44 AM : Reading real life stories about how NF2 affects people help others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness #endNF2 #NF2awareness #neurofibromatosis type2 #NF2SWN #NF2support https://t.co/0SrkwzLYAZ
- Fri, June 2 2023, 9:14 AM : Reading real life stories about how NF2 affects people help others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness #endNF2 #NF2awareness #neurofibromatosis type2 #NF2SWN #NF2support https://t.co/Itgtde0uaC
- Wed, May 31 2023, 11:29 AM : Delighted to let you know Oscar took on his challenge on Monday walking 7.65km. Thank Emily & Lily who walked with us for moral support. We have raised an incredible £1533. Our fundraiser is still open if you would like to donate https://t.co/16JTORtRSE #neurofibromatosis type2 https://t.co/1QseGkMfMI
- Wed, May 31 2023, 10:41 AM : Delighted to let you know Oscar took on his challenge on Monday walking 7.65km. Thank Emily & Lily who walked with us for moral support. We have raised an incredible £1533. Our fundraiser is still open if you would like to donate https://t.co/u7rhc9c81A #neurofibromatosistype2 https://t.co/qzjdwdH04F