About

PNH Support is a patient led charitable incorporated organisation registered in England and Wales (no 1161518) which supports patients and their families here and in Northern Ireland living with the rare disease, paroxysmal nocturnal haemoglobinuria (PNH).  We support patients and their family members including through the provision of information, advice and advocacy in order that the voice of our community can be heard and accessed by relevant stakeholders.

       

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£50.00 donated and £0.00 in GiftAid

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PNH Support from PNH Support

PNH Support is a patient led charitable incorporated organisation registered in England and Wales (no 1161518) which supports patients and their families here and in Northern Ireland living with the rare disease, paroxysmal nocturnal haemoglobinuria (PNH).  We support patients and their family members including through the provision of information, advice and advocacy in order that the voice of our community can be heard and accessed by relevant stakeholders.

Twitter

For further information visit the twitter feed.

  • Fri, May 29 2020, 11:53 AM : RT @FraserLMacrae: New work from our lab and St. James's PNH team. Patients with PNH, a condition where the complement system attacks blood…
  • Mon, May 25 2020, 1:21 PM : RT @ApellisPharma: Today, we announced plans to submit a New Drug Application (NDA) for pegcetacoplan in paroxysmal nocturnal hemoglobinuri…
  • Mon, May 25 2020, 1:18 PM : RT @NHSMillion: Unfortunately we’ve lost quite a few followers today because we condemned Dominic Cumming’s actions. But for us, the healt…
  • Wed, May 20 2020, 7:02 PM : RT @Shotoole81: On #ICTD2020 the national biobank working group @crdireland and researchers in @tcddublin and @stjamesdublin with #ppi inpu…