About

PNH Support is a patient led charitable incorporated organisation registered in England and Wales (no 1161518) which supports patients and their families here and in Northern Ireland living with the rare disease, paroxysmal nocturnal haemoglobinuria (PNH).  We support patients and their family members including through the provision of information, advice and advocacy in order that the voice of our community can be heard and accessed by relevant stakeholders.

       

£50.00 raised by 3 supporters

£50.00 donated and £0.00 in GiftAid

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PNH Support from PNH Support

PNH Support is a patient led charitable incorporated organisation registered in England and Wales (no 1161518) which supports patients and their families here and in Northern Ireland living with the rare disease, paroxysmal nocturnal haemoglobinuria (PNH).  We support patients and their family members including through the provision of information, advice and advocacy in order that the voice of our community can be heard and accessed by relevant stakeholders.

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