About

As many of you will know, Tracheo-Oesophageal Fistula Support (TOFS) is a charity that is very close to our hearts. 

Following a difficult IVF pregnancy, our twins were born at 36 weeks in December 2017.  When they were two days old, and following Leo not being able to keep down his milk feeds, Leo was diagnosed with Oesophageal Atresia and Tracheo-Oesophageal Fistula, which was operated on at four days old (his oesophagus was in two halves with a 2cm gap and the bottom half was attached to his trachea). 

A great deal of the first two years of Leo's life was spent in and out of hospital and he had a second surgery to widen his oesophagus last year.  At three and half years old Leo still relies predominantly on a soft and bite-sized diet and is still facing many challenges. 

Although this condition can be improved by different surgeries along the way it is very much a life-long condition.  Thankfully, in the early days we came across the TOFS charity and the information and support we have received since then has been invaluable to us as a family. 

TOFS receives no government funding and that is why it is so important to us to raise money where we can. 

We will complete our VLM though a mixture of walking, running and jogging (there's a LOT of training needed), on a route planned by us.

Thank you in advance for anything you are able to donate.


£1,178.25 raised by 36 supporters

£1,027.00 donated and £151.25 in GiftAid

Donations

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Supporting

TOFS from TOFS

TOFS offers support to people born with Tracheo-Oesophageal Fistula (TOF) and/or Oesophageal Atresia (OA). These are rare congenital malformaltions of the gullet and windpipe. Immediate neonatal surgery is a treatment, not a complete cure. We are UK-based and receive no public-sector support at all.