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Clare runs Disney Florida Half (21k) Marathon!

About

A different kind of running race for me!

This October, I'm getting my trainers on again to raise funds for Cure NF2 Foundation.

There is a special reason I'm travelling so far (UK-USA), using my holiday time and getting up for the start line at 03:00 on the day!

I lead the UK arm of Cure NF2 Foundation, a stand alone registered charity in England & Wales funding PhD research into NF2 at Manchester Uni. Scott, Olivia & Zac have NF2.

The Global entity have organised an event where we can fundraise as well as meet each other for the very first time. A fantastic opportunity to have fun, meet, connect as well as conduct our important quarterly board meeting together. We are travelling in from all over the world.

Board members, families, patients will be running 5k, 10k or 21k over the weekend and we are excited to use the trip to push our patient led foundation forward.

NF2 is degenerative, patients live from scan to scan. It has to stop!

Please support my run if you can. Thank you.

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Updates

Pre-training started in June getting back into running again and hitting some Park Run 5k's and club runs on Tuesdays throughout that hot Summer! So keeping consistent with faster and then longer runs.

Training proper started end of August and the build is in full swing!


Updated on Sun, September 20 2026, 3:42 PM

Supporting

NF2 BioSolutions UK

We are a registered UK charity that supports research to bring an end to the pain and suffering of children and adults with Neurofibromatosis Type 2 (NF2). NF2 is very rare with under 2000 cases in the UK, it's a condition that causes tumours to grow in the brain and spine as well as elsewhere in the nervous system. As the tumours grow, they cause permenent and life changing damage. Those affected have the condition from birth, NF2 is degenerative and a ticking time bomb. We are a not for profit, patient led charity with all donations going directly to end NF2. Our board of trustees includes the lead specialist for NF2 in the UK Professor Gareth Evans. We can't do it without you Thank you

£1,418.75 raised by 21 supporters

£1,170.00 donated plus £248.75 in GiftAid

Donations

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