On Sunday October the 4th I will be running (and probably a bit of walking!) the Virtual London Marathon (yes all 26.2miles!) in support of the TOFS Charity.
Thanks to everyone who has donated directly to TOFS on my behalf.
The route will be several loops around Porthcawl, I hope to start & finish on the front (as long as I can park....)
TOFS is short for Tracheo-Oesophageal-Fistula Support, it is a condition where babies are born with their oesophagus not connected to their stomach, they require surgery soon after birth to repair and re-join the oesophagus.
My daughter Megan was born with TOF and also a condition called Oesophageal Atresia (OA) where her food pipe was a dead end just below her mouth and the lower part of it was connected to her windpipe. Megan had surgery at 3 days old to repair the TOF/OA but also, cutting a long story short, needed more major surgeries later on, including a gastric transposition. She has had her challenges but has grown up into a beautiful young woman (inside and out) and leads a full and active life, which is all a parent can ask.
We have been members of TOFS for many years, they have always been a great source of information & support to us.
TOFS receive no government funding and during the COVID pandemic, like all charities, they have struggled for funds so any donations you can give would be fantastic, thank you so much.
Just to let you know that anyone who is a connected person to me sadly cannot Gift Aid their donations, including:
TOFS offers support to people born with Tracheo-Oesophageal Fistula (TOF) and/or Oesophageal Atresia (OA). These are rare congenital malformaltions of the gullet and windpipe. Immediate neonatal surgery is a treatment, not a complete cure. We are UK-based and receive no public-sector support at all.